Silent Data, Active Patients

Cæcilie Sloth Laursen; Sisse Finken

doi:10.1007/978-3-030-62803-1_31

Silent Data, Active Patients

Research output: Conference Article in Proceeding or Book/Report chapter › Article in proceedings › Research › peer-review

Abstract

With the wake of digital welfare, governments advocate that patients play an active role in managing their own illnesses. This active role is sustained by access to and use of health data provided by health care authorities through new digital technologies. Stepping into an empirical site where patients log in to their own site, ‘MyChart’, we inquire their practices reading health care data and their imaginaries about active involvement in their own health care. With this, our analysis focuses on the active patient and aims to bring forth local imaginaries in an effort to nuance data imaginaries located in political strategies, which relate data access with active partnerships. Within this, we illustrate how patients are active, while data is silent and in need of work before it vocals meaningful for the patients.

Original language	English
Title of host publication	HCC: IFIP International Conference on Human Choice and Computers : Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings
Editors	David Kreps, Taro Komukai, T. V. Gopal, Kaori Ishii
Number of pages	11
Volume	590
Publisher	Springer
Publication date	10 Nov 2020
Pages	398-408
ISBN (Print)	978-3-030-62802-4
ISBN (Electronic)	978-3-030-62803-1
DOIs	https://doi.org/10.1007/978-3-030-62803-1_31
Publication status	Published - 10 Nov 2020
Event	14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020: Human-Centric Computing in a Data-Driven Society - Cancelled due to covid, Tokyo, Japan Duration: 9 Sept 2020 → 11 Sept 2020 Conference number: 14 https://hcc14.net/

Conference

Conference	14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020
Number	14
Location	Cancelled due to covid
Country/Territory	Japan
City	Tokyo
Period	09/09/2020 → 11/09/2020
Internet address	https://hcc14.net/

Series	IFIP Advances in Information and Communication Technology
ISSN	1868-4238

Keywords

Digital health care
Active patients
Sociotechnical imaginaries
Data work

Access to Document

10.1007/978-3-030-62803-1_31

LaursenFinken-SilentDataActivePatients-HCC14-preprintAccepted author manuscript, 293 KB

https://link.springer.com/chapter/10.1007%2F978-3-030-62803-1_31

Cite this

Laursen, C. S., & Finken, S. (2020). Silent Data, Active Patients. In D. Kreps, T. Komukai, T. V. Gopal, & K. Ishii (Eds.), HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings (Vol. 590, pp. 398-408). Springer. https://doi.org/10.1007/978-3-030-62803-1_31

Laursen, Cæcilie Sloth ; Finken, Sisse. / Silent Data, Active Patients. HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. editor / David Kreps ; Taro Komukai ; T. V. Gopal ; Kaori Ishii. Vol. 590 Springer, 2020. pp. 398-408 (IFIP Advances in Information and Communication Technology).

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abstract = "With the wake of digital welfare, governments advocate that patients play an active role in managing their own illnesses. This active role is sustained by access to and use of health data provided by health care authorities through new digital technologies. Stepping into an empirical site where patients log in to their own site, {\textquoteleft}MyChart{\textquoteright}, we inquire their practices reading health care data and their imaginaries about active involvement in their own health care. With this, our analysis focuses on the active patient and aims to bring forth local imaginaries in an effort to nuance data imaginaries located in political strategies, which relate data access with active partnerships. Within this, we illustrate how patients are active, while data is silent and in need of work before it vocals meaningful for the patients.",

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Laursen, CS & Finken, S 2020, Silent Data, Active Patients. in D Kreps, T Komukai, TV Gopal & K Ishii (eds), HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. vol. 590, Springer, IFIP Advances in Information and Communication Technology, pp. 398-408, 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, 09/09/2020. https://doi.org/10.1007/978-3-030-62803-1_31

Silent Data, Active Patients. / Laursen, Cæcilie Sloth ; Finken, Sisse.
HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. ed. / David Kreps; Taro Komukai; T. V. Gopal; Kaori Ishii. Vol. 590 Springer, 2020. p. 398-408 (IFIP Advances in Information and Communication Technology).

Research output: Conference Article in Proceeding or Book/Report chapter › Article in proceedings › Research › peer-review

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Laursen CS , Finken S. Silent Data, Active Patients. In Kreps D, Komukai T, Gopal TV, Ishii K, editors, HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. Vol. 590. Springer. 2020. p. 398-408. (IFIP Advances in Information and Communication Technology). doi: 10.1007/978-3-030-62803-1_31