Silent Data, Active Patients

Research output: Conference Article in Proceeding or Book/Report chapterArticle in proceedingsResearchpeer-review

Abstract

With the wake of digital welfare, governments advocate that patients play an active role in managing their own illnesses. This active role is sustained by access to and use of health data provided by health care authorities through new digital technologies. Stepping into an empirical site where patients log in to their own site, ‘MyChart’, we inquire their practices reading health care data and their imaginaries about active involvement in their own health care. With this, our analysis focuses on the active patient and aims to bring forth local imaginaries in an effort to nuance data imaginaries located in political strategies, which relate data access with active partnerships. Within this, we illustrate how patients are active, while data is silent and in need of work before it vocals meaningful for the patients.
Original languageEnglish
Title of host publicationHCC: IFIP International Conference on Human Choice and Computers : Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings
EditorsDavid Kreps, Taro Komukai, T. V. Gopal, Kaori Ishii
Number of pages11
Volume590
PublisherSpringer
Publication date10 Nov 2020
Pages398-408
ISBN (Print)978-3-030-62802-4
ISBN (Electronic)978-3-030-62803-1
DOIs
Publication statusPublished - 10 Nov 2020
Event14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020: Human-Centric Computing in a Data-Driven Society - Cancelled due to covid, Tokyo, Japan
Duration: 9 Sep 202011 Sep 2020
Conference number: 14
https://hcc14.net/

Conference

Conference14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020
Number14
LocationCancelled due to covid
Country/TerritoryJapan
CityTokyo
Period09/09/202011/09/2020
Internet address
SeriesIFIP Advances in Information and Communication Technology
ISSN1868-4238

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