Exploring users’ willingness to share their health and personal data under the prism of the new GDPR: implications in healthcare

Maria Karampela, Sofia Ouhbi, Minna Isomursu

Research output: Conference Article in Proceeding or Book/Report chapterArticle in proceedingsResearchpeer-review

Abstract

At the same time healthcare undergoes a digital transformation, the implementation of the new General Data Protection Regulation (GDPR) introduces changes to internet users. Understanding users' data-sharing attitudes for four type of personal data in regards to the new GDPR can facilitate stakeholders and policy-makers in healthcare to make sense of the current landscape. Authors analyzed the results of a questionnaire survey to explore the willingness of 8.004 people across four European countries to share four types of data: health; perceived values or beliefs; consumption habits and purchases; and wealth. Our results suggest that participants are more willing to share health data and data about beliefs and values than wealth information and that GDPR has impacted the data-sharing behavior of the participants.
Original languageEnglish
Title of host publication2019 41st Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC)
PublisherIEEE
Publication dateOct 2019
ISBN (Electronic)978-1-5386-1311-5
DOIs
Publication statusPublished - Oct 2019

Keywords

  • Digital transformation
  • General Data Protection Regulation (GDPR)
  • Personal data sharing
  • Healthcare policy
  • Data-sharing attitudes

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