Silent Data, Active Patients

Cæcilie Sloth Laursen; Sisse Finken

doi:10.1007/978-3-030-62803-1_31

Silent Data, Active Patients

Publikation: Konference artikel i Proceeding eller bog/rapport kapitel › Konferencebidrag i proceedings › Forskning › peer review

Abstract

With the wake of digital welfare, governments advocate that patients play an active role in managing their own illnesses. This active role is sustained by access to and use of health data provided by health care authorities through new digital technologies. Stepping into an empirical site where patients log in to their own site, ‘MyChart’, we inquire their practices reading health care data and their imaginaries about active involvement in their own health care. With this, our analysis focuses on the active patient and aims to bring forth local imaginaries in an effort to nuance data imaginaries located in political strategies, which relate data access with active partnerships. Within this, we illustrate how patients are active, while data is silent and in need of work before it vocals meaningful for the patients.

Originalsprog	Engelsk
Titel	HCC: IFIP International Conference on Human Choice and Computers : Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings
Redaktører	David Kreps, Taro Komukai, T. V. Gopal, Kaori Ishii
Antal sider	11
Vol/bind	590
Forlag	Springer
Publikationsdato	10 nov. 2020
Sider	398-408
ISBN (Trykt)	978-3-030-62802-4
ISBN (Elektronisk)	978-3-030-62803-1
DOI	https://doi.org/10.1007/978-3-030-62803-1_31
Status	Udgivet - 10 nov. 2020
Begivenhed	14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020: Human-Centric Computing in a Data-Driven Society - Cancelled due to covid, Tokyo, Japan Varighed: 9 sep. 2020 → 11 sep. 2020 Konferencens nummer: 14 https://hcc14.net/

Konference

Konference	14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020
Nummer	14
Lokation	Cancelled due to covid
Land/Område	Japan
By	Tokyo
Periode	09/09/2020 → 11/09/2020
Internetadresse	https://hcc14.net/

Navn	IFIP Advances in Information and Communication Technology
ISSN	1868-4238

Emneord

Digital health care
Active patients
Sociotechnical imaginaries
Data work

Adgang til dokumentet

10.1007/978-3-030-62803-1_31

LaursenFinken-SilentDataActivePatients-HCC14-preprintAccepteret manuskript, 293 KB

https://link.springer.com/chapter/10.1007%2F978-3-030-62803-1_31

Citationsformater

Laursen, C. S., & Finken, S. (2020). Silent Data, Active Patients. I D. Kreps, T. Komukai, T. V. Gopal, & K. Ishii (red.), HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings (Bind 590, s. 398-408). Springer. https://doi.org/10.1007/978-3-030-62803-1_31

Laursen, Cæcilie Sloth ; Finken, Sisse. / Silent Data, Active Patients. HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. red. / David Kreps ; Taro Komukai ; T. V. Gopal ; Kaori Ishii. Bind 590 Springer, 2020. s. 398-408 (IFIP Advances in Information and Communication Technology).

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abstract = "With the wake of digital welfare, governments advocate that patients play an active role in managing their own illnesses. This active role is sustained by access to and use of health data provided by health care authorities through new digital technologies. Stepping into an empirical site where patients log in to their own site, {\textquoteleft}MyChart{\textquoteright}, we inquire their practices reading health care data and their imaginaries about active involvement in their own health care. With this, our analysis focuses on the active patient and aims to bring forth local imaginaries in an effort to nuance data imaginaries located in political strategies, which relate data access with active partnerships. Within this, we illustrate how patients are active, while data is silent and in need of work before it vocals meaningful for the patients.",

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Laursen, CS & Finken, S 2020, Silent Data, Active Patients. i D Kreps, T Komukai, TV Gopal & K Ishii (red), HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. bind 590, Springer, IFIP Advances in Information and Communication Technology, s. 398-408, 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, 09/09/2020. https://doi.org/10.1007/978-3-030-62803-1_31

Silent Data, Active Patients. / Laursen, Cæcilie Sloth ; Finken, Sisse.
HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. red. / David Kreps; Taro Komukai; T. V. Gopal; Kaori Ishii. Bind 590 Springer, 2020. s. 398-408 (IFIP Advances in Information and Communication Technology).

Publikation: Konference artikel i Proceeding eller bog/rapport kapitel › Konferencebidrag i proceedings › Forskning › peer review

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Laursen CS , Finken S. Silent Data, Active Patients. I Kreps D, Komukai T, Gopal TV, Ishii K, red., HCC: IFIP International Conference on Human Choice and Computers: Human-Centric Computing in a Data-Driven Society 14th IFIP TC 9 International Conference on Human Choice and Computers, HCC14 2020, Tokyo, Japan, September 9–11, 2020, Proceedings. Bind 590. Springer. 2020. s. 398-408. (IFIP Advances in Information and Communication Technology). doi: 10.1007/978-3-030-62803-1_31